A Little Cochlear Panic Attack

I haven’t done an update in a while reporting how far along SJ is with new words and hearing milestones. It’s been a bit discouraging lately. I have had a hard time getting her to keep her CI’s on. She does fine at church and school, but anywhere else it is an everyday battle. Then add to that the set back of her having the pain on the right side (which is gone now, praise God) and then on Sunday one of her processors looked like it was broken and then there are the times that they are lost and it’s always stressful! Those little flashing magnetic “earrings”are by far those valuable things we own monetarily.

 In fact even if you added up all of our assets it still wouldn’t be close to the worth of her processors.

Imagine how I felt yesterday when the kids were playing on the balcony and SJ had her headband off. Then I saw her looking through the cracks of wood down to the balcony below us.

There are some spaces between the planks and she thought it would be fun to drop her barrette, headband, and each processor individually through the cracks. AND it appeared that one of them landed in a bowl of water, which meant I had 30 minutes before that thing became worthless. To say I freaked out is probably an understatement. I don’t remember exactly how I reacted because that whole moment felt like it happened in another dimension.

The first thing I needed to do was just simply ask our downstairs neighbors if I could retrieve it. So I bolted down the stairs and started knocking and then banging on the door. No answer. So I went back upstairs and tried to think like Tom Cruise’s character in Mission Impossible. Could I climb down, not without dying. Would a broom reach, not even close, I tried. Think, think, think! Call the landlords’s? I felt uneasy about our downstairs neighbors. I think I can safely explain without them finding out because the chances of them reading a mom blog, especially mine, are slim to none. Anyway, the downstairs neighbors have a Pit Bull, his name is Ozzie and if the dog could talk he would probably curse like Ozzie just like his owners do. None the less I had no time to loose. I scribbled out a note along with my phone number and I went back downstairs to tape it to the door. The door has a fuzzy black wreath hanging on it along with an eyeball welcome mat. 
I know that some people decorate early for Halloween, but this might be year round decor for them. I snapped a pic with my phone because after my relentless knocking I knew I wasn’t bothering anybody.

Finally when I returned up to my apartment I had a stroke of genius and I remembered a giant paper clip that I could probably make a hook out of and we had some string from the recent pinata festivities so I had to basically make a fishing line. Because the processors are magnetic I was able to lower the metal hook down through the crack and it stuck right to the first one which was in the water.

Getting it back through the crack without knocking it off was the most nerve wrecking, but it worked. That was the biggest relief. Getting the second one was harder because it wasn’t a straight shot, but eventually after jerking the string up and down to cause the clip to land in different spaces I got it and at that point I was on a roll so I went for the hairband too. The kids were crowded around me watching as if it were a scene from the Sandlot (remember “I’ve got get that ball back. You don’t understand”). Except instead of a ball signed by Babe Ruth it was some cochlear Implants and instead of The Beast it was Ozzie (who luckily was not on the porch).

I told J the day that I have less than 3 major crisis/emergencies will be a good day and for the past week or so I’ve had some really bad days. All is well that end well.

By |2023-06-12T06:23:15+00:00September 6, 2013|My Life, Our Hearing Loss Journey|4 Comments

Laugh Out Loud Conversations With Z

A year ago I posted some of the humorous lines I had heard Z say when he was 4 years old. If you didn’t see it you should check it out. We all got tons of laughs from the goofy perspective of our preschooler. He kept us laughing this year as well. I wish I could remember all of the funny moments, but at least I had some of them posted on Facebook which helps.

Here are ten of the most memorable conversations with Z at 5 years old

1. I told the kids they had to watch something educational (something they hear me say a lot). Then I thought I heard Z say “how about something rectal” I knew that couldn’t be right so I asked “something what?” and he repeated himself “rectal” I just stared in shock and confusion. He further explained,”Something Wreck-it-al, you know, like, Wreck It Ralph”. Although I like how he cleverly combined his favorite movie and the word “educational” it just didn’t work.

2. Conversation on the way to school. 


Me: Zion, do you think you would be interested in learning spanish? 
Zion: Well, I already know one language. 
Me: Yeah, what is that? 
Zion: Talking
Me: Talking is a verb it’s not your language. Do you know what language you speak?
Zion: Chinese. 
Me: No. What language do Americans speak?
Zion: American? 
Me: Closer. It’s English. We speak English. 
Zion: Oh. Never heard of it.

3. This one is in reference to his understanding (or lack) of his little sisters hearing loss. He says,
 “When I was two and I was deaf I didn’t follow directions either”.
Half of that is true. 

4. Another misconception of what it means to be deaf was when Ezie had a dirty diaper and Z said “at least it doesn’t bother SJ because she can’t smell since she is deaf”

5. Z had been wanting a “cap like daddy”. He really wanted a blue cap specifically. So when he found this hat he knew it was the one because it is blue and says “cap” on it. 
Eventually I told him the truth about it being the letter “G” and spelling Gap. From that point on he called his hat a Gap and will say things like “I think I’ll wear my Gap today”.

6. A conversation about the 50 States project
    Me: “Z, did you know uncle Brandon posted your video on the internet?”

    Z: “Did he post it on our internet too?” 

7. This next conversation happened in the car and was in reference to Z’s keen sense of direction. 

J: Z, in 10 years I don’t know if I’m going to be able to hold a candle to you.
Me: I don’t know if I’ll be able to hold a candle to you in a year.
Z- Well in 3 months you are both going to be lighting a candle on my cake and giving me a card because that is when my birthday is. 

8. A random conversation out of the blue


   Z- Mom, cars are expensive right? 
   Me- Yes
   Z- and important? 
   Me- Yes
   Z- I’m going to get one when I’m 20.
   Me- Sounds good.

9. Then there was this akward conversation before I just recently started letting him go to some public restrooms alone 
Z: SJ has to poop a lot
me: Why do you think that?
Z: Because she never stands up


10. Most recently while at Party City Z found a big number 6 candle. He grabbed it and thought we should get it. I said “I dont know. Don’t you want to blow out six candles instead?” (Its cheaper and we already had some.) He got excited and said yeah that’s a great idea! Then he went to grab 5 more of the number six candle.

Thanks for laughs little man! 

    

By |2015-05-14T23:15:34+00:00September 4, 2013|Uncategorized|3 Comments

The Ultimate Super Hero Party

The last time I did a theme party was when SJ turned 2 (a year and a half ago). I was more than ready to jump in with both feet this year for Z’s 6th birthday. I’ve known for almost a year that we were going to do the super hero theme. It’s so trendy right now and it’s always in style for boys, so there was no shortage of ideas or resources to pull from. And as always I came up with some Messy Mom originals. I will share all about the craftsy pinterest inspired stuff later, but for now lets just take a peak at what my son called the best birthday party of his entire life.

The best part about having a super hero party is getting to be a Super Hero.

We had extra costumes, just to be sure no one was left out.

My SUPER talented dad threw together a city scape backdrop to use for photos and I would love to show you dozens of pictures because they were all so cute and fun, but I’ll narrow it down to a few for now, how about that? 

Another highlight of the event was the homemade batman piñata.

They took turns hitting it with a big cane and it wasn’t long before…

candy and treats showered all over the little heroes. YAY!

Unfortunately, right after that we had to use our super speed powers to rush inside to avoid the severe storm that was quickly approaching. Everything went from a nice warm and breezy summer evening to the tornado scene from the Wizard of Oz. The sky turned black and ugly, but at least we had the power of (ahem) good weather apps so we weren’t completely taken off guard.

Inside the house Z opened presents and had birthday cake.

Each child got a party favor and the evening ended up being a total success!

Happy Birthday Z, I mean Captain America! 
By |2015-05-14T23:15:34+00:00September 3, 2013|Uncategorized|3 Comments

9 & 10 Months (A Two For One Deal)

So I totally missed doing an update at 10 months for Ezie who is 11 months today. He gets the short end of the stick as the third born when it comes to photos and documentation. No shortage in the lovin’ department though. As I told him this morning “I love you to the moon and back, and every single space in-between, without a doubt forever and always” and then I give him  a zillion smooches until his chubby little face starts to look completely bored. Seriously though, he is the best baby ever. We are so blessed to have this breath of fresh air in our lives.

As far as his 9 month milestones he has had an eventful summer.

He went in a pool for the first time. I shouldn’t be surprised that he loves water, he was a water birth after all.

He also started singing at 9 months, I shouldn’t be surprised by this either. His dad has done vocal performance for the past 20 years. This isn’t the best clip (and there is not any visual since I was driving), but Ezie has a variety of tunes with different tempos and unintelligible lyrics. He sings a lot and it’s adorable.

He also went from showing no interest in movement and being completely stationary to suddenly crawling like there is no tomorrow. I love to hear his hands pitter patter on the floor. Cutest thing ever.


This is his Batman costume from Z’s party. Definitely more photos coming SOON.

At 9 months old Ezie started pulling himself up to a standing position. He has tried to cruise around a bit, but has had no success at this point.

Another milestone was his first hearing test in a sound booth. His right side technically needs to be retested because he scored so low, but we are all confident that the reason was fatigue since they tested the left side first. There are absolutely no red flags for Ezie’s hearing, other than having parents that have connexin 26.

Now onto what happened at 10 months old. 

He got 3 new teeth, for a whopping total of 11 teeth, and he has 3 more on the way.

He is also pointing and mimicking a lot of words, sounds, rhythms, and gestures.

His first flight was last month from Ohio to Texas and he did so good. He slept most of the time both ways.

He is still nursing every 5 hours (give or take) and he naps 3 times a day. His favorite distraction is straws believe it or not. He loves to gnaw, tap, throw, and twist plastic straws which is great because they are usually pretty easy to come by.

Lastly, I must confess that I still carry all of his 24 pounds around in the infant car seat. I know he is ready to graduate up to the next size and I get comments on that, but the problem is I have two other kiddos to keep up with. In an emergency I can set Ezie down if he is in his car seat, which comes in handy if, lets say I need to pick SJ up from throwing a tantrum in the parking lot, or help Z with his belt in the restroom. Hopefully he will be able to stand up on his own soon and then I will feel more comfortable carrying him around without the car seat.


 I wear Ezie in the Ergo backpack style everyday to the bus stop and on nature walks, or even while decorating a birthday cake!

I can’t believe the next time I do a monthly update he will be a year old. Insert pouty face here. I have never been this attached to the baby stage. As far as being so far behind on keeping track of all of his milestones and baby memories, that is my goal for the next month. I have to get cracking on his baby book and our family albums. I am going to take some professional 1 year photos too! Hold me to it, okay?

By |2015-05-14T23:15:34+00:00September 2, 2013|Uncategorized|2 Comments

TOLO

1 down 35  to go. We just completed the first week of our new school schedule. Being a mop (mother of preschoolers) is tough biz. I can attest to that, but I never realized the energy and organization that would need to go into having kids in school. Granted, it would be easier if I didn’t have to work with completely different schools, with different schedules in separate cities. One things for sure though, the days ZOOM by. Here is what our daily routine has looked like this week.

We get up at 7:00 and take SJ to school at 8:00. I have to park the car and walk her into her class.

Afterwards we usually run some errands do some laundry and have lunch.

I walk Z to the bus stop at 12:30.

We are supposed to be there by 12:42 so this gives us plenty of time to get there, especially since the bus has been late everyday, except one day which we ended up having to run to catch it. I had Ezie in the Ergo on my back when this happened. I am sure it looked comical. The driver apologized for being early. I just appreciated her waiting for us.

After we get back up to the apartment I have a couple hours where it is just me and Ezie.

At 3:00 I have to go get SJ

 

 Once again I have to park the car and go to the upper level of the school. No drive up service here. From there we go back to the apartment I get both kids upstairs and go back down in 20 minutes to walk to the bus stop where we wait, and wait, and wait. 

Once Z gets off we go back up to the apartment unpack our stuff.

 

We have tried to have outside time everyday weather permitting. Then it’s back up the stairs one final time for dinner, then bath, and bed.. It goes by so fast! Everyday I say “It’s already 5 o’clock?” Everyday!

So the frustrating part is that I feel like I am going up and down the stairs and buckling and unbuckling the kids all day long. For the record the bus thing is not my idea, but I tried to drive him and I can’t realistically make it from SJ’s school to his school in time and even if I did I would have to get Ezie and SJ out of the car and walk into the school to sign him out anyway, because that is how they do things.
The big fiasco with Z’s school has certainly put a damper on everything, but I am trying to have a good attitude and make the most of it.

On the bright side I get a lot of exercise. And I like having a routine. I like getting the kids to bed earlier and getting up earlier. It feels more productive all the way around. Both Z and SJ seem to enjoy their schools a lot.
 
As the weeks go on I am sure it will get easier and I will figure out more efficient ways to manage our time.

Maybe you are thinking “Whoa. How do you do it all and tote around a ten month old on top of it?” I don’t know. I ask myself the same thing. I don’t mind though. There is all this hype about YOLO these days and that’s great, but my motto is TOLO, They’re Only Little Once.

By |2015-05-14T23:15:34+00:00August 31, 2013|Uncategorized|2 Comments

Praise Reports

Needless to say things have been a bit stressful around here. It’s like one big emergency after another, but I like to believe that the worst is behind us.

They say when it rains it pours, so I should not be surprised that in the middle of getting ready for school to start and dealing with various medical situation Z would break his glasses. It was in a very awkward place too. We tried apoxy, super glue, and in the privacy of our own home I was even desperate enough to use tape. Thus the funny photo I posted the other day.




Long testimony short we got an anonymous envelope  in the mail with nothing but cash inside and it was the exact amount it costed to get Z’s glasses fixed just in time for school! I have no idea who this good samaritan is, but if you are reading this thank you for your generosity and for being a willing vessel. God is good.




As far as SJ, the scary episodes she was having with her internal device seem to have subsided and we saw her ENT today. He showed me her CT scans and gave a very thorough explanation of what it appears has happened. The good news is that the internal device is not misplaced, but it has shifted a little bit within the area that it was implanted. This is not anything you can see from the X-ray, but judging by her symptoms it is pretty obvious. It will heal itself by building up scar tissue that will secure the device again and she will be 100% back to her normal once the process is complete. She hardly ever touches her head there anymore, so I think it will be smooth sailing from here. We will see the Doctor again in two months just to be sure. 


Both of these things were like mountains before us along with the horrible infection I got in the middle of it all, but everyone is healthy and doing well now. Praise the Lord. Thank you for all of your prayers! 

By |2015-05-14T23:15:34+00:00August 28, 2013|Uncategorized|1 Comment

It All Happened In a Week

I look back at last week and I think Did all of that really just happen?

The week started out with a bang as I began to feel sore and and achey on Sunday and had a 102 degree fever through the night.

On Monday J had to work so he called up the reinforcements and my mom came right away. I went to the Doctor and got a prescription for what was diagnosed as a bad case of mastitis. 

Tuesday my mom was back because of SJ’s head sensitivity which of course resulted in a trip to the hospital. She’s doing much better by the way. 

Then on Thursday I had to drive to northern Kentucky to pick up Z’s glasses which were broken. That is a whole other story.  Then Thursday night Z and I had our first meet the teacher. 


He is doing a pose.

Friday my dad came up to help with the kids so that I could fly out to Texas for my nieces bridal shower.

The shower was beautiful, it would be nice if I had taken a better picture. 

It’s been a year since I’ve been back to Texas which is too long. The trip was short (one full day, that’s it), but sweet. I got to spend a little bit of time with one of my best friends. We were pregnant at the same time last year, but her son is 4 months older than E (although you’d never know it by size!)


In other baby news I got to meet my great niece for the first time. 


 I also got to catch up with a family member (and friend) who was also pregnant the same time as me last year. Here we are lookin’ pretty big in August 2012


And now in 2013 we’re just pretty.

I flew back the next morning and I’m ready (I hope) for another busy week.  Z starts kindergarten tomorrow and his BIG spectacular superhero costume party is Saturday. I have my work cut out for me!

By |2015-05-14T23:15:34+00:00August 26, 2013|Uncategorized|2 Comments

The First Day of School and She Didn’t Even Get Through Lunch

SJ had her first day of preschool yesterday at Ohio Valley Voices. 
However, almost immediately after dropping her off I got a call from her ENT’s nurse wanting to know if we could be at Children’s hospital at 12:00 pm to do a CT Scan. This wasn’t out of the blue. I was expecting the call I just didn’t know when. I have to back up to last Friday in order to explain what we are dealing with. J and I noticed that SJ was touching the right side of her head a lot. It looked like she was experiencing some irritation or sensitivity around where her implant is. We even debated whether or not she should wear her processors. Most of the time she was fine, but we noticed it off and on all weekend. It gradually became worse to where on Monday she was up at 5:00 am crying and holding her hand on her head where her right implant is. It doesn’t matter if she is wearing the external parts or not, what hurts is obviously on the inside and is not sound related. For hours she did not seem like herself. So I called her Doctor and I told them what was going on. The lady that answered the phone (bless her heart) said the Doctor could see her on November 3rd. I told her that if it were as simple as a bruise it would be gone by then, and if it were worse it would be too late! I had to call a couple times and eventually after several different conversations I got the order for a CT scan. So after I got that phone call yesterday I picked SJ up from school and we went to the hospital. 

Cincinnati Children’s hospital was great (same place we went for the stitches). They rank third in the nation and they’re kind of a big deal. I couldn’t find a picture of the fun jungle themed CT scanner, but I did come across this pirate one that is at the Joe Dimaggio Children’s hospital in Florida, which is even better. It’s like a carnival ride! Who wouldn’t want to go on that? 

 This morning after dropping SJ off for her second day of school they called me again, this time with the results. Everything looked fine (no shifting or visible problems with the device and nothing wrong with her brain), which is great news, but unfortunately that still leaves me with a lot of questions. Something is causing this pain. She gets random “episodes” several times a day and one time she even tried to put a bandaid over her hair where her implant is She will also go through spurts where she is content like there is nothing wrong at all, even if I touch her right implant. Her ENT set an appointment for Tuesday and I will get to speak with him directly and just hope we get to the bottom of this. I know my daughter and she is usually a TOUGH COOKIE. The most important thing for me right now is to just be a voice for her. She can’t tell us exactly what is wrong, but until she indicates that it no longer bothers her I will keep pushing for some kind of answer. As always, prayers are appreciated. 

By |2015-05-14T23:15:34+00:00August 21, 2013|Uncategorized|4 Comments

I Don’t Usually Cuss But…

Okay, I don’t usually cuss, but Siri thinks I do! Let me explain. there have been a few times that my words have been misinterpreted by Siri when I used voice activation. According to my phone I have a variety of swearwords and one time she even responded with “now Natalie” in her notorious robotic tone.  Another time  I was trying to search for how to boil CORN when I heard her say”searching the web for how to boil porn” Yeah, that’s not what I said.

Have I mentioned how much I love this voice to text option on my new iPhone? Yes I have. I’m using it right now. I use it a lot. I use it to make my to do list throughout the day.

I recently dictated  a list on my phone of things I need to get done before the new school year starts.  One thing I had on my agenda (and I’ve blogged about this) is to get blackout curtains. There is a big security light right outside the kid’s window so before the school year starts it is important that they get some good sleep. I bought some, but I still I needed to hang the  BLACK OUT curtains. 

I’m so conservative you guys,  I really hope this post doesn’t offend anyone. It’s  all humorous to me because I’ve never had a potty mouth, it’s just not me. That’s why I was shocked when I was going over my to do list and one of the items was “hang f*#$ed up curtains”.  Honestly, I just giggled like a 5th grader and took a screenshot. What was really funny though was that later that night when we hung the black out curtains J came and told me I had bought two different panels. What!? I said. Then I went to the kids room to check it out. Sure enough one was long and one was short. It was then that I realized my phone was right, those really are some “effed” up curtains.

By |2015-05-14T23:15:34+00:00August 20, 2013|Uncategorized|5 Comments

I Am Not TRYING To Be Difficult

This whole Kindergarten, First grade, homeschool, public school fiasco has been a little embarrassing. I feel like such a weirdo. I could just do what I’m told and take orders from the government on how to educate, vaccinate, and give birth to my children, but no I have to make everything so difficult. And it might look like I am trying to make things difficult or that I am trying to make a statement, but I am really not. I am to the point right now that I would like to take a break from being the maverick.

 In High School I think I was completely confident with being an individual. I didn’t want to be mainstream and was looking for ways to add pizzaz and spunk to my life, like have a picnic on top of a car. I have a photo of that somewhere. Now, I don’t need to do that anymore, my kids have enough individuality and spontaneity to last me a lifetime. EVERYDAY or more like every hour I am dealing with stuff like this

or this

or this

and then some.

So when I make choices like home birth or do things like homeschool my son for Kindergarten it is not because I am seeking individuality. In fact I would love more than an anything to be able to blend in a little bit.

As far as our schooling decision is concerned I was just about in tears talking to my husband and wondering why I have to make everything so difficult. I told him I was ready to be the good suburban soccer mom and not have to fight anymore. He said “Well, you can’t do that.” and I said “Why not?” I expected him to say something about the family I come from, or how he won’t let me, but what he said struck me. He said because you have conviction. It’s true. Even my faith isn’t all that popular now that I’m removed from the Bible belt, but it doesn’t matter because those are my convictions.

I’ve talked with several women about homeschooling and got some great feed back. I started looking into a supplementary homeschool program in the area (I called it “subsidized in my last blog post, I need to edit that). In the end though, it was going to cost a lot of money and take a lot more restructuring just to have some regular peer interaction for Z if I homeschooled. I could just put Zion in Kindergarten for half the day and allow him to be with other kids (for free) and then the other half of the day I can teach him and do projects with him and just forget the label of grade level. One thing I have learned from all of this homeschool research is that it is less about testing and ranking, and more about the joy of learning. I am going to apply that to Z’s education for the year. So in a way I am choosing both, although for all practical purposes Z is in public school and he is a kindergartener. We are actually about to head out right now to go inside his school for the first time and pick up the welcome pack.

One little disclaimer before I go. When I say I have convictions about how I raise my children, they are personal convictions. I am in no way implying that parents that do do things the more conventional way are not fighting for their kids. I think we all have our own battles. Most parents are just striving for what is best for their families individually and it’s different for everyone. Whether it’s homeschool, private school, deaf school, special ed, or private school I hope you all have the best school year ever!

By |2015-05-14T23:15:34+00:00August 16, 2013|Uncategorized|3 Comments
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