Last Day of Kindergarten
I can’t wait to see what comes next.
I can’t wait to see what comes next.
*This was originally written over a year ago. Sometimes I just need to write even if I keep it to myself, but today, on the 2nd anniversary of her diagnosis, I am ready to share.*
In the world of hearing loss I feel like the label “Late Identified” is a big red stamp across my daughter’s forehead. These days most deaf children are diagnosed through a brief newborn hearing screening before they even leave the hospital. Since SJ wasn’t born at the hospital we never had any testing done until she was over two years old.
SJ’s birth was perfect. It was hands down one of the most amazing, beautiful, and spiritual moments of my life, but if I could change the past then I would have had a screening test done after the home birth.
The first seconds of SJ’s life!
As with any treatment plan, like with cancer or autism, the earlier you can diagnose and intervene, the better. There are so many benefits to getting started at a young age when it comes to language, and we lost two years of valuable time. However, having those years of not knowing did have some benefits.
When I blogged for the first time about SJ’s hearing, Amanda (from Oh Amanda) left me a link to a woman she called her hero. That woman was Rachel Coleman of Signing Time. I read her story, got several of her videos, and she soon became my hero as well. Her daughter Leah was also late identified because the hospital had taken a break from newborn screenings for a brief time before they became mandatory and that was when Leah was born. Here is what Rachel said about her daughter being late identified.
“Was it meant to be? I don’t know. I wonder how over-protective and lame I would have been if they had handed me my newborn baby and said, by the way she’s profoundly deaf. Looking back I can see the blessing it was that we got to know Leah for her first year with the complete expectation that she could do anything, she was limitless. When we did hear her diagnosis “severe to profound hearing impairment” when she was 14 months old, we mourned. We cried. We felt silly. We couldn’t believe it. We thought there was a mistake. We hoped it would go away. We felt all of that and more at once! Finally we looked at Leah and she was still her happy beautiful self. And we recognized that for Leah nothing had changed. Nothing was wrong.”
Boy do I relate to that! When we first came to SJ’s school, one of the advisers had commended me on how well I’ve done at communicating with SJ despite her hearing loss. She told me that many parents have a hard time just talking with their deaf children and unknowingly tend to turn their conversation toward someone that is listening to them. I’d like to take credit for being so loving, but I didn’t know she was deaf.
Another therapist was astounded by SJ’s cognitive abilities and said she had never worked with a deaf child potty trained at such a young age. I’d like to take credit for that too, but once again I didn’t realize I was potty training a deaf child (and besides that she initiated it). For over two years I treated her like any other baby/toddler. We didn’t fret. We weren’t trying to protect her. We weren’t taking action. We just loved her as she was, and in the mean time she loved us back and proved to be a very capable, thriving, joyous little lady.
I know now more than ever how vital communication and language is. However, in those years we “lost” by not starting therapy or using hearing devices we also gained a lot and I learned a valuable lesson. She understood me. She may not have understood my words, but our love transcended all of that. Our hearts spoke to one another. I have always told my kids that I love them more than words can say and for SJ I’ve lived that truth.
This week was parent teacher conferences at SJ’s school. I wanted to do something special for her teacher’s because SJ goes to the best school ever with the greatest staff in the world.
Exaggerate much?
Well, to me it is all of that, and it’s been a God send for SJ. The least I could do is look up a simple thank you on Pinterest. I liked this printable from Tammy Mitchell Designs.
Instead of having SJ (Sedona) sign them I scanned her name and added it to the printable. That was her teachers favorite part, getting to have a keepsake of her name which she had JUST learned to spell.
In fact, out of nowhere she has been blowing me away with her handwriting. She can’t read, or sound things out. She doesn’t know ANY of the alphabet. So, considering all that, it is amazing that she can not only spell her name by heart (which is a long one), but she also knows several letters from her friends and family’s names. Just one example is when she saw the word Happy and thought it said “Hailey” which is a classmate. Then she had written some names on a piece of paper to which she pointed from bottom to top saying “Sedona, Zion, Ezra, Mommy”
Some of the letters she did get right, and I don’t think it was just a coincidence. She is starting to make the connection. She also very suddenly went from scribbling blobs to drawing houses, rainbows, buildings and people.
And here is one of daddy playing guitar.
There are other areas she is falling a little behind in. I don’t want to focus on that because her team assured me and reassured me that she is doing wonderfully and it’s nothing to be alarmed about. I am going to work on making sure she keeps her implants on ALL the time at home and the school is going to pull her out of nap next year, since she doesn’t nap anyway, so that she can have more tutoring. I’m sure she will be fine and we can all pray and believe that she catches up in the area of sentences and can continue to move forward in order to really reach her fullest potential!
Lastly, here is a video I put together for her teachers to see the progression she has made since coming to the school a year ago. If you’ve watched any of the videos on my blog you’ve probably seen most of these and can skip this, but it’s still interesting to see 18 months unfold in 6 minutes. The first clip is with hearing aids and she can’t speak at all, she is mostly just looking at the therapist and trying to mimicking through the visuals. Nearly 6 months later she is implanted and activated, and she started to hear words and repeat them. This potato head video was an enormous breakthrough for Sedona. The third clip is summer school and she is still mostly repeating words with prompting, but she recognizes several vocabulary words. Then fast forward to this year where she can understand a TON more and is saying a few simple sentences and communicating by answering questions. The last clip is one I took at home of her practices some of her vocab. She knows 300 words now (give or take) and is has even started to sing for the first time.
That’s what’s happening with SJ. I want to do a blog post about Z’s school next. I was a part of a Common Core webinar yesterday and it’s been confusing and a little scary, but nevertheless I love his school. I will elaborate on all that later. I hope everyone has a really GOOD Friday!
I feel like SJ’s been tattling on Z since birth. One time, before she could ever talk at all, she came running into my room crying. Z came following right behind her yelling “she’s lying”. Hmmm. That sounds suspicious. However, she has come a long way in the past 6 months and the progression is evident in the way she and Z bicker. In October she went from just pointing at Z to actually being able to say his name.
It really was a major milestone. Then in December she started piecing two words together and saying “Z hit!” (or Z push, Z hurt, Z boo boo, etc.) Her latest achievement is the 3 word combination such as “Z hit me”. I hate to be so enthusiastic about sibling rivalry, but it really is exciting to watch her build her communication skills!
There are other things I am sure would annoy most parents, but I am just thrilled to hear her talk. For example the other night we had cut off juice for the day and told her she could have water. She didn’t like that and she just kept whining JUUUUUUICE. Then when she was given a cup of water she said “No. I want apple juice.” Perfectly clear. How am I supposed to respond to that? I didn’t give in, but I did smile and maybe clap a little.
She has said several other sentences recently like
“Mom, I hear phone”
“I hear it”
“I want pudding”
“I will do it”
“Daddy sit down.”
“Baby Ezie’s turn”
She can also count to 5 and knows several colors.
She sang 5 little monkeys along with her class for a school presentation. Here is a video of Z and SJ practicing.
Last week she was in The Very Hungry Caterpillar play and said her line perfectly, which was “I eat hotdog”, without any cue.
Way to go SJ!
She is making great strides. Even her bedtime routine has made a complete 180 degree turn since I last complained mentioned it. It’s hard for me to capture her talking on video. I always have my hands full, and you know how kids are, they stop the moment the camera is ready. However, the webcam helps some because she seems to respond well to the computer. That’s how the video above was recorded (Z changed the background to fish), and this one is her showing some of her vocabulary word pictures. In it she says over 20 words. I know she is very difficult to understand. There are a lot of sounds she can’t make yet, like the “C” sound which is why car sounds like “har”. She understands so much though and she is able to articulate more and more each day.
That’s just a small portion of a ten minute video! That girl is on fire. It was this time a year ago that she said her first word and now she knows a couple hundred words. For 6 years Z was the only one talking and it won’t be long now that I will have three chatter boxes on my hands. Bring it on.
Captions for the video:
Bird, cow, dog, rabbit, hand, ear, feet, eye, horse (twice in a row), bug, strawberry, hamburger, kitty cat, bike, cow (which she calls horse at first), sink, hotdog, crackers, pizza, chair, cup, bed, spoon knife, fork, boat, phone.”
One of the things I have learned along the way in this journey is how you can homeschool in a very small space. When we had to pull Z out of school last year I just began working with him in the parent lounge in the upper level of SJ’s school, and I was amazed at what we accomplished.
It made me realize that you can homeschool almost anywhere.
If I had to share one tip for someone homeschooling with limited amount of “classroom” space I would say to become best friends with your local library.
I know every library is different, but even the most basic of branches have books, that much I can guarantee. This is a great way to get some free resources and not have to keep them stored. Just use, learn, and return. Our library even had “learning packs” that you check out according to themes like rhyming, manners, music, etc. Each big duffel bag included toys, games, flash cards, books, videos and more that were all focused on that one subject. It was awesome.
Now, I am not a homeschool expert by any means. I just happen to be curious about it and interested in learning more. So I asked some friends of mine to share their input about homeschooling in small spaces.
Jen and her husband have 4 children and have lived in a variety of different apartments and rental properties which all would qualify as small. She is the one that sent me the poem that I posted yesterday and she is the first one I asked to help me share tips on homeschooling in small spaces.
Her number one piece of advice was to keep things simple. When it comes to supplies and curriculum Jen likes to make sure she is using what she has and if not then get rid of it. She also says that their family table is multipurpose. They use it as a dining table, but it is also where they do school.
With three small boys at least one of them has to be running around half naked right?
Jen not only tolerates having a smaller home, she actually appreciates it. She says “Everyone has varied reasons for homeschooling. However, usually a common denominator regardless of reasons is a desire for togetherness. Small spaces certainly provide that! Yes, some days are hard, but I wouldn’t trade it. I like being able to hear and see what is going on from my perch in the kitchen and I like that it gives us ample reason to choose an intentional lifestyle.”
Lastly Jen pointed me to a great blog resource, Raising Life Long Learners (which has tons of info on homeschooling in small spaces), and Philippians chapter 4 (an encouragement for moms in the thick of this stuff). I will definitely be checking those out.
Her boys have been able to learn about the world while traveling through it!
Welcome To My 31 days series on finding lots of hope in a little home.
I haven’t done an update in a while reporting how far along SJ is with new words and hearing milestones. It’s been a bit discouraging lately. I have had a hard time getting her to keep her CI’s on. She does fine at church and school, but anywhere else it is an everyday battle. Then add to that the set back of her having the pain on the right side (which is gone now, praise God) and then on Sunday one of her processors looked like it was broken and then there are the times that they are lost and it’s always stressful! Those little flashing magnetic “earrings”are by far those valuable things we own monetarily.
In fact even if you added up all of our assets it still wouldn’t be close to the worth of her processors.
Imagine how I felt yesterday when the kids were playing on the balcony and SJ had her headband off. Then I saw her looking through the cracks of wood down to the balcony below us.
There are some spaces between the planks and she thought it would be fun to drop her barrette, headband, and each processor individually through the cracks. AND it appeared that one of them landed in a bowl of water, which meant I had 30 minutes before that thing became worthless. To say I freaked out is probably an understatement. I don’t remember exactly how I reacted because that whole moment felt like it happened in another dimension.
The first thing I needed to do was just simply ask our downstairs neighbors if I could retrieve it. So I bolted down the stairs and started knocking and then banging on the door. No answer. So I went back upstairs and tried to think like Tom Cruise’s character in Mission Impossible. Could I climb down, not without dying. Would a broom reach, not even close, I tried. Think, think, think! Call the landlords’s? I felt uneasy about our downstairs neighbors. I think I can safely explain without them finding out because the chances of them reading a mom blog, especially mine, are slim to none. Anyway, the downstairs neighbors have a Pit Bull, his name is Ozzie and if the dog could talk he would probably curse like Ozzie just like his owners do. None the less I had no time to loose. I scribbled out a note along with my phone number and I went back downstairs to tape it to the door. The door has a fuzzy black wreath hanging on it along with an eyeball welcome mat.
I know that some people decorate early for Halloween, but this might be year round decor for them. I snapped a pic with my phone because after my relentless knocking I knew I wasn’t bothering anybody.
Finally when I returned up to my apartment I had a stroke of genius and I remembered a giant paper clip that I could probably make a hook out of and we had some string from the recent pinata festivities so I had to basically make a fishing line. Because the processors are magnetic I was able to lower the metal hook down through the crack and it stuck right to the first one which was in the water.
Getting it back through the crack without knocking it off was the most nerve wrecking, but it worked. That was the biggest relief. Getting the second one was harder because it wasn’t a straight shot, but eventually after jerking the string up and down to cause the clip to land in different spaces I got it and at that point I was on a roll so I went for the hairband too. The kids were crowded around me watching as if it were a scene from the Sandlot (remember “I’ve got get that ball back. You don’t understand”). Except instead of a ball signed by Babe Ruth it was some cochlear Implants and instead of The Beast it was Ozzie (who luckily was not on the porch).
I told J the day that I have less than 3 major crisis/emergencies will be a good day and for the past week or so I’ve had some really bad days. All is well that end well.
I have always said that I would never EVER homeschool. Many of my closest friends do. They do it well and I respect them all the more for it. So, it’s not that I am against it, it’s just that I never felt like I was cut out for it. I have done a lot of homeschooling research lately since we had to pull the 5 year old out of Pre-K. It’s a slippery slope I tell ya. The more I get into it, the more I am intrigued and start to picture myself getting lost in the creativity of new ideas and rewarded by the delight that comes when you see a child’s eyes light up with discovery. Then I snap back to reality. I am not saying that it could never happen, but I would have to hand them over to a tutor or a DVD teacher by 3rd grade. I am so bad at math. No really, I am not talking about trigonometry, I am saying that I am intimidated by fractions.
Regardless of whether or not homeschool is even part of the equation (Equation. Yuck.) I will still always be involved in my children’s education in the most hands on way possible. I think that all parents should be. I have learned so much since embarking on this new academic territory. Some of the most enlightening advice I’ve received came from one of Z’s teachers. She was seeing signs that Z may be gifted and talented because of how quickly he picked up on things and eagerly wants to learn more. Counting to a hundred was never enough so she challenged him with counting in spanish. She told me with GT kids your goal is to broaden and expand the level they are on rather than just have them scurry off to the next one. The key is learning not just vertically, but horizontally. That’s when I reached up and pulled the chain that turned on the light bulb over my head.
I have been able to apply this method when teaching both of my kids together when they are not only different ages, but completely different learning styles (SJ’s pertaining to her special needs). I’ve been doing this all along, but it’s clicking and making more sense now. Let’s say you are working in the garden together. The baby may be experimenting with soil and learning that it does not taste good while the preschool age child is learning that seeds grow into plants and healthy foods. The parents and elementary age child may be working together to understand the science behind germination and life cycles.
Lately I’ve been trying to increase the amount of reading time I have with my kids. Z is learning to read along and SJ is learning to listen. One of the books we read on a daily basis is First Words.
I know it’s a book for babies, which I only have one of, but even though SJ is 3 her hearing age is 3 months. We have to be able to go back to the BASICS for her to be able to listen and speak. When we go through this book SJ is able to practice saying AHHHH for airplane and her imitation of watermelon is totally unintelligible but she gets that it has 4 syllables and makes 4 grunts. At the same time Z is able to read some of the words in the book and enjoys helping me work with his little sister. In the meantime Ezie is like whatever. He likes to watch them though and I just keep on learning more and more from all three of them. It’s like a mutualistic symbiotic relationship. Okay, I had to look that up, but I couldn’t resist adding a little science. There it is.
The 24 hours leading up to Ezra’s birth were a lot more intense than with my other two. It wasn’t easy, but it was a privilege.
My whole world turned upside down when we decided to sell our house and leave the place we’ve called home for the first 11 years of our marriage. Then my computer turned upside down when it fell off the bed! The good news is it was under warranty, the bad news is I lost my entire hard drive. I have come a long way when it comes to making back ups, so all of my work related data and personal files were covered except for November and December because I slacked off in the middle of getting ready to move.