Black & White Baby
Maybe I’ve been watching too much call the midwife, but I absolutely love the vintage look of these! He’s such a cutie!
Maybe I’ve been watching too much call the midwife, but I absolutely love the vintage look of these! He’s such a cutie!
I feel like this particular topic would be best expressed through pictures. I call this series of selfies “Messy Mom Faces the End of the School Year”
There are pros and cons to summer and I probably don’t even know half of them since I am a newbie to all of this. I will say that some relief comes knowing that school is almost out. In fact I feel like I am dragging myself across the finish line. I brought SJ to school an hour late today because I overslept. Not only has SJ been late, but I have missed the bus twice this week with Z! They’ve gone to school without back packs or lunch boxes. I feel like the “worst end of school year mom ever”. I can’t wait for school to be over! Or can I?
Maybe I am like Olaf the snowman from Frozen.
I am singing and dreaming about summer without having a full understanding of what I am up against. I love my family. I like having my kids around, but our current situation with the lack of space and noise complaints and all that makes things a little tricky. I’ve got a plan though, and that is to make a plan. I have 23 days to prepare. This summer is going to run like a well oiled machine I tell you.
I am not going to sit back and let the carefree warm days of summer run me over. NO! I will face it head on with military force AND IT WILL BE FUN. So there.
*This was originally written over a year ago. Sometimes I just need to write even if I keep it to myself, but today, on the 2nd anniversary of her diagnosis, I am ready to share.*
In the world of hearing loss I feel like the label “Late Identified” is a big red stamp across my daughter’s forehead. These days most deaf children are diagnosed through a brief newborn hearing screening before they even leave the hospital. Since SJ wasn’t born at the hospital we never had any testing done until she was over two years old.
SJ’s birth was perfect. It was hands down one of the most amazing, beautiful, and spiritual moments of my life, but if I could change the past then I would have had a screening test done after the home birth.
The first seconds of SJ’s life!
As with any treatment plan, like with cancer or autism, the earlier you can diagnose and intervene, the better. There are so many benefits to getting started at a young age when it comes to language, and we lost two years of valuable time. However, having those years of not knowing did have some benefits.
When I blogged for the first time about SJ’s hearing, Amanda (from Oh Amanda) left me a link to a woman she called her hero. That woman was Rachel Coleman of Signing Time. I read her story, got several of her videos, and she soon became my hero as well. Her daughter Leah was also late identified because the hospital had taken a break from newborn screenings for a brief time before they became mandatory and that was when Leah was born. Here is what Rachel said about her daughter being late identified.
“Was it meant to be? I don’t know. I wonder how over-protective and lame I would have been if they had handed me my newborn baby and said, by the way she’s profoundly deaf. Looking back I can see the blessing it was that we got to know Leah for her first year with the complete expectation that she could do anything, she was limitless. When we did hear her diagnosis “severe to profound hearing impairment” when she was 14 months old, we mourned. We cried. We felt silly. We couldn’t believe it. We thought there was a mistake. We hoped it would go away. We felt all of that and more at once! Finally we looked at Leah and she was still her happy beautiful self. And we recognized that for Leah nothing had changed. Nothing was wrong.”
Boy do I relate to that! When we first came to SJ’s school, one of the advisers had commended me on how well I’ve done at communicating with SJ despite her hearing loss. She told me that many parents have a hard time just talking with their deaf children and unknowingly tend to turn their conversation toward someone that is listening to them. I’d like to take credit for being so loving, but I didn’t know she was deaf.
Another therapist was astounded by SJ’s cognitive abilities and said she had never worked with a deaf child potty trained at such a young age. I’d like to take credit for that too, but once again I didn’t realize I was potty training a deaf child (and besides that she initiated it). For over two years I treated her like any other baby/toddler. We didn’t fret. We weren’t trying to protect her. We weren’t taking action. We just loved her as she was, and in the mean time she loved us back and proved to be a very capable, thriving, joyous little lady.
I know now more than ever how vital communication and language is. However, in those years we “lost” by not starting therapy or using hearing devices we also gained a lot and I learned a valuable lesson. She understood me. She may not have understood my words, but our love transcended all of that. Our hearts spoke to one another. I have always told my kids that I love them more than words can say and for SJ I’ve lived that truth.
I know Easter Sunday is old news now that it’s officially May and all, but it really was a beautiful weekend and I don’t want to miss the opportunity to share about it. Plus I have a couple of other updates to sneak in along with it.
Before Easter even happened the kids got to participate in some egg hunts. I didn’t want to spend money on baskets, and plastic bags tend to rip easily so I opted for cloth sacks. I just happened to have some that were the perfect size for the kids. The funny thing about it was that Z and SJ’s bags were from Urban Outfitters and Ezie had a Tom’s bag. Can we say ‘hipster easter’?
I did a quiz online once that was supposed to say what kind of mom you are (don’t ask me why). I got hipster mom. I’m really not. Compared to a real hipster I am probably suburban nerd mom, but sometimes, like for this egg hunt, or when Z includes a print out of an instagram in his homework,
that’s when I see little glimpses of the validity of that quiz.
Back to Easter. The Saturday before, we spent the night in a hotel because J has been filling in as an interim worship leader at a church in Indiana. The kids enjoyed the indoor pool. I froze, but it’s a sacrifice I am willing to make to see happy children.
By the way, the caption on this instagram was “Sedona’s suspected growth spurt was confirmed today when she was tall enough to get into the Ikea play area for the first time!”
Easter morning was spent at River Valley Community church with J leading the congregation in song. Besides J’s temporary involvement I have further connection with the church through the work that my brother did painting the children’s room.
I know Easter outfits can be kind of a thing so I picked out a special floral dress from the Gap outlet with the Easter service specifically in mind. Granted that was three years ago, but it did happen. I posted a collage online voluntarily exposing my fashion faux pas.
The first year I wore the dress I was pregnant with Ezie, had super long hair, and was living with my parents.
The next year I had really short hair, a 6 month old and we were living with my brother.
This year my hair is growing out, Ezie is a walking talking 18 month old, and we live in an apartment in Ohio.
My caption was that so many things have changed over the past 3 years. What hasn’t changed is my dress!
As far as the children’s attire the boys had matching shirts that their Aunt got them for Christmas last year
and SJ’s dress was from my mom.
They all looked adorable.
Anyway, after church we met up with my family at a park in Kentucky. The kids got books, chalk, bubbles and kites as part of their Easter presents from the grandparents. I love that this year the sweets were at a minimum and in it’s place were educational or classic toys.
The weather was perfect. The company was too. It was a wonderful way to celebrate such a joyous day. Christ is risen!
Then we found a wooden baby gate for a dollar!
We desperately needed a gate to keep the kids out of the office area where there is no door. They had previously broken the two cheap ones we had before, and we knew it was time to invest in one that actually opened and closed. When we found this one for a buck we didn’t even care that it needed a little work. You know J, he tweaked it and he had it functioning perfectly in no time. It really has been a huge blessing to us!
If you somehow stumbled upon this blog post looking for a deeper understanding of what Common Core is, I am not your gal. I still don’t totally get it. I was told it was the new national content standards and not a curriculum, but it seems like there is curricula attached to these new content standards in some form or another.
This week was parent teacher conferences at SJ’s school. I wanted to do something special for her teacher’s because SJ goes to the best school ever with the greatest staff in the world.
Exaggerate much?
Well, to me it is all of that, and it’s been a God send for SJ. The least I could do is look up a simple thank you on Pinterest. I liked this printable from Tammy Mitchell Designs.
Instead of having SJ (Sedona) sign them I scanned her name and added it to the printable. That was her teachers favorite part, getting to have a keepsake of her name which she had JUST learned to spell.
In fact, out of nowhere she has been blowing me away with her handwriting. She can’t read, or sound things out. She doesn’t know ANY of the alphabet. So, considering all that, it is amazing that she can not only spell her name by heart (which is a long one), but she also knows several letters from her friends and family’s names. Just one example is when she saw the word Happy and thought it said “Hailey” which is a classmate. Then she had written some names on a piece of paper to which she pointed from bottom to top saying “Sedona, Zion, Ezra, Mommy”
Some of the letters she did get right, and I don’t think it was just a coincidence. She is starting to make the connection. She also very suddenly went from scribbling blobs to drawing houses, rainbows, buildings and people.
And here is one of daddy playing guitar.
There are other areas she is falling a little behind in. I don’t want to focus on that because her team assured me and reassured me that she is doing wonderfully and it’s nothing to be alarmed about. I am going to work on making sure she keeps her implants on ALL the time at home and the school is going to pull her out of nap next year, since she doesn’t nap anyway, so that she can have more tutoring. I’m sure she will be fine and we can all pray and believe that she catches up in the area of sentences and can continue to move forward in order to really reach her fullest potential!
Lastly, here is a video I put together for her teachers to see the progression she has made since coming to the school a year ago. If you’ve watched any of the videos on my blog you’ve probably seen most of these and can skip this, but it’s still interesting to see 18 months unfold in 6 minutes. The first clip is with hearing aids and she can’t speak at all, she is mostly just looking at the therapist and trying to mimicking through the visuals. Nearly 6 months later she is implanted and activated, and she started to hear words and repeat them. This potato head video was an enormous breakthrough for Sedona. The third clip is summer school and she is still mostly repeating words with prompting, but she recognizes several vocabulary words. Then fast forward to this year where she can understand a TON more and is saying a few simple sentences and communicating by answering questions. The last clip is one I took at home of her practices some of her vocab. She knows 300 words now (give or take) and is has even started to sing for the first time.
That’s what’s happening with SJ. I want to do a blog post about Z’s school next. I was a part of a Common Core webinar yesterday and it’s been confusing and a little scary, but nevertheless I love his school. I will elaborate on all that later. I hope everyone has a really GOOD Friday!
I had a friend call once and hesitantly asked if it was a good time to talk. I told her it was, and she responded with “Are you sure? because it’s sounds like you are out and I don’t want to interrupt.” I said “No I’m at home with the kids”. She thought I was at Chuck E. Cheese. I’m not too surprised. That’s just what it sounds like on any given day, except if we really were like a Chuck E. Cheese then my children wouldn’t always be begging me to go to Chuck E. Cheese. I don’t even think that we are that loud, we are probably a very moderate volume. We just happen to have 3 children ages 6 and under in a relatively small space, so the sound has nowhere to go.
Sorry I didn’t take my complaint to you first, I just wasn’t sure how I would be received. I don’t think the noise I am hearing is a TV. It’s more like stomping, running, and jumping. Maybe it’s the people above you. It bothers my dog and makes him very nervous and scared. Then he gets sick. That is why I informed management. Thank you for your note.
Now I am no detective, but I have enough clues to fill in the missing pieces here. The lady with the dog had a note taped to her door the week before. I saw it when I went to do laundry, but it didn’t mean anything to me and so I thought nothing of it. I’m guessing it said something to the effect of
I was informed by the landlord that there was a complaint about the noise level of my apartment. The only thing I can imagine this could be caused by is my TV and if it is too loud then I wish you would just come to me so that I can turn it down….
It sounds like all parties involved are being pretty considerate, so I appreciate that. And I do feel sorry for anyone that lives below my family or Jim Gaffigan’s (that was a plug for the book Dad Is Fat. If you haven’t read it then you should and then you’ll get it). But what it comes down to is a dog that gets nervous vs. my three energetic children. Now I hate to be an obnoxious neighbor, but I refuse to raise my kids in a prison cell and they will continue to be allowed to be children during daylight hours. I do the best I can to get them out of the apartment to get their exercise at McDonald’s, the nature center, a local park etc. It’s not easy, but it’s for my sake and theirs that I do this. Even with all of that there are days that weather, illness, or money does not permit recreational activity or days where despite my best efforts they still manage to be silly and hyper at home.
In conclusion, I make sure the kids take off their shoes when they come inside (something they are supposed to be doing anyway) and I have let them know at 8:00 it’s quiet time. That’s really the best I can do. Unless maybe someone knows where I can find some doggy ear plugs.
We all have different ways of letting off steam. Some people de-stress by knitting, others like to take it to the gym. I personally have always found writing to be therapeutic (surprise), for J it’s playing guitar. Not that it’s limited to one activity, but I think it’s important that we find ways to connect with our emotions and clear our minds every once in a while.
Z has been at an interesting stage lately. He still has meltdowns, but he’s the only one I don’t have to worry about throwing an uncontrollable fit when it’s time to leave the park. It’s a beautiful thing to watch this level of control develop. Some days are better than others, but it won’t be long before he catches up to J in terms of temper tantrums (okay, I’m kidding). Besides just managing emotions, I have noticed something else. He is finding his own unique way of self expression.
Several months ago (Just before Z turned 6) he began to secretly write some of his frustrations out on paper when he was mad or upset. I know a lot of children do this, but as far as my observation among my friends it’s especially common for girls. The one that made me cry was when his grandparents were in town. It was time for them to head back to Texas so we walked down to their mini van and said our goodbyes. Z seemed totally fine, but after a while of not hearing a peep out of him I peeked in his room. I noticed he was drawing and I asked him about it.
He showed me a picture of the family crying in-between the van and the apartment building. I said, you miss grandma don’t you? That’s when the big tears that had been forming became too heavy to hold back anymore, and he just broke down. We called grandma and she suggested he count down the days until our Christmas trip to Texas and mark them off daily.
November-February were taped together like a calendar on his wall.
Z responded well to that idea. Later we printed December off the computer and he drew a car on the day that we were leaving and returning and put happy faces on the days we would be there.
This wasn’t the only time he used drawing/writing to express his emotions, but it’s not always this sweet. Sometimes when Z is mad at me he will disappear to his room and write something like “I wish I was never born” or “dad is bad” or one time I found the words “I don’t like mom” crumpled up on the floor after we had a big argument. I picked it up, flattened it out and read it, but he very defensively said he was joking. I told him that I didn’t believe that and I was sad that he felt that way, but if he was ready we could talk about it. Then he said “Well, I didn’t mean it. That’s why it’s trash.” We talked about it and everything was fine. Even when it is hurtful I encourage this type of outlet because we all have to vent, and he is finding a healthy way to decompress at a very young age. How awesome is that?
I get it, because it is JUST LIKE ME. I received my first journal when I was in 2nd grade. It was a Secret Garden journal from my aunt in California. I got it for Christmas and it even had a lock and key! Then when I was in high school I started writing poetry. I have a little notebook full of pages of poetry. Poem after poem of all of my hopes, fears, and pain. Some of them were really dark. Thank goodness I used journals to cope instead of drugs right? Actually, I was never offered drugs. Still, I like to believe I chose to stay away from them (wink wink).
Yesterday after being told he was done playing the wii for the day, and then throwing a monstrous baby fit about it, he was sent his room. Moments later a paper airplane crashed just short of me with a message on it.
With broken spelling it said “If you treat me that way then I guess you don’t care about me and I see you don’t love me either” on the back it said “read and then sign here _________”. So I signed it and wrote “I will always care about you and love you no matter what, in good times and bad”. Then he signed it and wrote “thanks for the note” We had a talk about whether his behavior was respectful or disrespectful and he recognized his poor choices and that was our big melt down for the day. It was dramatic for sure, but a lot of maturity has happened in the past two years.
I mention this because Z, as the first born, has been quite the pioneer in teaching me when to expect what as far as age appropriate development. When babies are too young to talk we understand that they are frustrated because they cannot communicate with us. Then around two, three, four (you know that blissful stage of cooperation) they can talk and so all should be well, right? First of all we are always a work in progress so there is never a certain point that you arrive and no one ever has to deal with your crap anymore, but beyond that let’s go back to the first paragraph. How do three year olds de-stress? How do they cope? They can’t blog, they can’t go shopping, or go for a hike. They can jump around and scribble. I am sure that helps, but my point is, what if the the thing that they were inherently born with that allows them to feel a sense of relief and self gratification is not developed or discovered yet. It makes it a little easier to sympathize with them instead of just getting frustrated that they are so frustrated so often. I know there is a lot more to it than that, and I am no psychiatrist, but in the mean time I can have some grace and patience for these little bitties (and bigger kids too). In the same way that I don’t demand that a 10 month old “use their words”, a can’t expect my two year old to have a mature sense of self expression.
I would encourage you as your child gets to be around the age of 5 (according to The 5 Love Languages of Children) to see if you can recognize what activity, hobby, or interest is their healthy outlet. What can you do to nurture that God given desire in them? Or maybe you are still in search for that thing yourself. Either way we all get cranky, we are all progressing, and we all need grace.
One of Z’s first stories- The dog is red. The sky is blue. The sky is cool blue. The dog is red. I love the dog. He is my pet. The end.
And the guests of honor’s nieces rocking the photo booth.
A few days later I did the superlative photos for my church’s private school (which is where I attended until 6th grade). It was definitely a small class, but what they lack in size
They make up for in personality. So that ended up being a super fun assignment.
Even my brother was involved in that he made this thank you video from a couple of the kids at the school.
It’s been two years since I have considered myself actively practicing photography and I don’t think that I need to explain why. It feels like the Lord is bringing me back to it though, which is both exciting and scary. Still, I know if He is with me I have nothing to be afraid of. This new (old) venture will all fall into place if that is what is supposed to happen. So far it’s been effortless and it’s reminded me what I loved about the art of capturing people’s precious memories and weaving them together to cherish forever (and that would be my shameless blog for “Memory Weaver Photography”). Full Facebook page coming soon.