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Pinning for New York

I signed up for Pinterest 5 months ago and it didn’t take too long for me to be hooked. Granted I haven’t had all the time in the world to focus on crafts and cooking lately, but for a while there I was implementing Pinterest ideas left and right.

I often use it to create ideas that I have repinned, like that one valentine’s craft I did. 
Or the time Z and I made this angry birds game.

I’ve also made about a dozen recipes that I’ve repinned and eventually I want to do a little mini series on this, but for starters here is a really simple recipe I discovered on Pinterest that is now a reoccurring part of many of our meals. J loves them!

I also love using Pinterest boards to keep all of my ideas in one place. This is what I did for SJ’s birthday party and it turned out to be such a success!

 My latest Pinterest board has been all about my upcoming trip to New York City.


 I never really shared how or why I am going to be in NYC for my birthday. It’s kind of silly, but I think it’s worth sharing. A couple weeks ago mom asked me what I wanted for my birthday and I nearly cried. Okay, maybe I did start crying a little bit. I am about to be 30 years old and that doesn’t bother me, but I’ve seen so many of my friends in Texas celebrate this milestone in fun and extraordinary ways. When I left Texas I knew I would not get to be a part of this tradition with them. I started not only missing my friends, but in a way missing my identity. Let’s face it, despite my attempts to live “life in the slow lane“, all year long I’ve been consumed with moving, pregnancy, hearing loss and motherhood in general. My mom did what mother’s do best and listened sympathetically to my little pity party and her wheels started turning. Thanks to working at the airport she knew we could get a great rate on airfare so she asked me where I wanted to go. I could pick anywhere in the US! The idea took me by surprise and I couldn’t think of anything, so she suggested New York city. Suddenly the thought of spending the last day of my twenties in the big apple was like a dream that I never knew I had. Since then I’ve been pinning, planning, and pining for New York city and early tomorrow morning we leave… or bust!

By |2015-05-14T23:15:40+00:00June 25, 2012|Uncategorized|1 Comment
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Blog Catch Up

In the past week I have thought about all the many topics that I needed to blog about. So since I flopped at blogging on any of them I’ll just get the ball rolling with a rapid update on each family member.

SJ got her new hearing aid molds which fit great and solved the feedback problem. What a relief!
SJ’s favorite summer time activity is chalk art, but for the record she did not create the love design.
I tried to enroll Z in preschool, but they said he wasn’t eligible because anyone turning 5 before October is considered kindergarten age. Ahhhh! Time to figure out a plan B I guess.
Z with his brand new glasses. I can’t believe how much he has grown. What a big boy. 
 J has temp job that is keeping him busy right now and all the gardening he did in the spring is starting to pay off.  
J have snuggle time at the park with his favorite little girl. 
Garden time with Z. 
Aside from a terrible cough that I ended up needing a prescription for, I have been feeling great with lots of kicks and Braxton Hicks. Oh, and our baby boy has a name!

I’m 24 weeks and almost into the 3rd trimester.
Let’s just say details to follow, although I am not sure when I will get to elaborate on all the details when I am busy getting ready for my trip to New York City where I will turn (get ready)… 30! Seriously though, details will be coming.  
By |2015-05-14T23:15:40+00:00June 22, 2012|Uncategorized|1 Comment
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SJ’s Signs Part 1

We leave for Illinois in about 2 weeks and we will be meeting up with old friends that haven’t seen SJ in a while. This video is to prepare them and other loved ones to see first hand what signs she knows. Knowing just a few simple signs will help bridge the communication gap, but she is also in the middle of getting the kinks worked out with her hearing aids and starting speech therapy so it’s also important to clearly verbalize the word with the sign so that we can continue to encourage both ASL and english. This isn’t something I want to push on everybody, but I want to make sure SJ’s friends and family have a fair chance to know what she is signing or how to get a point across to her, although truth be told she is 2 and won’t even look at what you are signing half the time!  

It was hard for me to narrow it down because there are so many other signs that she can say, but I don’t think you will need to know cat, bath, or ice-cream while we are camping. Here are some personal notes about the 10 signs I decided on for the video

1. More- This is the one she uses the most and it usually just means she wants something even if she hasn’t had any to have any more of.

2. Eat- She understands and produces this sign.

3. Help- She uses this one usually if she is trying to get something open although it is a little hard to recognize so I show her variation in the video.

4. Please- She doesn’t do this one often, but she has known it since before she was diagnosed hearing impaired, so I try to encourage manners and remind her to sign PLEASE when she wants something.

5. Toilet- Sometimes she signs toilet sometimes she just grabs herself, ha ha.

6. Thank You- Same as please and sorry. We are working on our manners.

7. Careful- SJ does use this sign, but she understands it. Since it is a command that comes up often with her I thought it might come in handy.

8. Sorry- She does not produce this sign either, but much like please it is something we are working on to show respect. If you sign it make sure to be expressive! Facial expressions are an important part of sign language.

9. No- She sees this one a lot and uses it a lot, but it’s usually because she is being a stinker.

10. All done- This was one of her first signs. She also sometimes uses it as a way to express when she doesn’t want something. Similar to wanting more of something she hasn’t had sometimes she is all done with something she hasn’t begun.

If you have any questions just let me know!

By |2023-06-12T06:31:41+00:00June 15, 2012|ASL, Uncategorized|2 Comments
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Tips and Links for Learning to Sign

Since finding out my daughter SJ has severe hearing loss my sign language vocabulary has gone from barely a handful to a pool full of words and information on ASL and deaf culture. I am still a beginner, but I’ve come a long way and I wanted to share some of the tools I’ve been using.

1. Baby Sign
When SJ failed her first hearing test I pulled out the baby signing curriculum that I haven’t glanced at in years. The DVD includes 145 ASL signs which I kept practicing until I knew them all. I also started watching Signing Time videos which are a great way for both children and adults to learn on a number of levels.

2. Talking With People
One of the best tools for me has been talking with some of my friends that are interpreters for the deaf. I have gone up to complete strangers that have hearing aids and talked to them. I have sought out council from friends of friends that are deaf or hard of hearing. I want to hear from anyone and everyone that can help me on this journey.

3. Phone Apps
There are a few free phone apps that I downloaded to help me learn on the go. There is one called Wierman’s family ASL which includes 50 signs and you can take quizzes. All the free apps are very limited, but every little bit helps when you are starting out and you can always delete them if they are taking up too much space.

4. ASL University
This website is really in depth and I’ve only completed 3 of the units, but it’s been informative and it was recommended to me by someone who teaches ASL full time.

5. Online Dictionaries
I have three websites that are my go-tos for looking up signs they were all recommended by some of my professional interpreter friends.

www.signingsavvy.com

www.aslpro.com

www.lifeprint.com 

My biggest advice as someone learning to sign is CROSS REFERENCE! It’s hard to learn when there is so much conflicting information on which sign is the right one. Many times there are a few different signs used depending on a persons age or region. It’s a bit of a headache, but I always check 3 sources and pick whichever is most common or up to date.

6. TV

Once I started learning ASL I noticed that signing was happening all around me already. For example programs my kid’s watch like, Blue’s Clues, Sprout Good Night Show , and PBS kids all use some sign language. Then I came across this Sia music video, which I had seen several years ago, but it didn’t occur to me at the time that the entire video was in ASL! Now I can watch it and recognize most of what they are signing. src=”http://www.youtube.com/embed/t1x8DMfbYN4?fs=1″ width=”480″>

7. Switched at Birth

I had a signing teacher recommend this show to me (featured on ABC family, ABCfamily.com, and netflix) and I was skeptical at first because I am just not a fan of teenage drama. Watching the entire first season  has confirmed that this show would probably be my last choice in entertainment OTHER THAN the sign language. Many of the main characters all communicate with ASL. Seeing the usage in conversation and modern language was SO helpful. I think this program is what really taught me to be more comfortable implementing what I know into every day speech. I would often rewind pause or try to interpret without reading the subtitles. I fully intend to watch the entire show again eventually just to see how much more I understand the second time around.

8. ASL dictionary


At this time in my journey I invested in a heavy duty hard back ASL dictionary for about $30 at half price books. I use it all the time, but I do wish it was even more current than 1998 edition because some of the words are outdated already.

9. Documentaries

The Sound of Fury
Through Deaf Eyes
Touch the Sound

The first two documentaries are on Netflix and they teach you a lot about deaf culture, cochlear implants, and the history of sign language. The last one is a film I saw several years ago about a deaf percussionist.

10. Practice

I think one of the reasons I have been more successful with ASL than any other language I have tried to learn is because it’s applied to my everyday life. I needed a language to speak to my daughter that is still in-between the world of the deaf and the hearing. I use sign language everyday and I keep an ongoing log of words I want to learn. My 4 year old keeps me on my toes anytime he asks me a sign that I don’t know I just say lets write it in the notebook and later we look them up. We usually do this practice once or twice a week. I will learn one song or story at a time and this helps a lot too. Every time I learn a new song or children’s book I realize there is a little less that I have to look up because my vocabulary is expanding.

I’m linking this up with Top Ten Tuesday at Many Little Blessings. I know it’s a lot of info, but I’ve wanted to share these tips with my friends and family for a while and I always love to network and learn new things myself (see #2). For those interested in my daughters story feel free to browse through the blog or read this post for details.

By |2023-06-12T06:27:12+00:00June 12, 2012|ASL, Uncategorized|287 Comments
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Getting Used to Hearing Aids

 SJ got her hearing aids on Friday. It was a long and exhausting day, but it had a good turn out. Our doctor told us that there were so many different reactions with children that you just never know what to expect. They may cry, they may squirm or act confused, they may not react at all. Or she said in a few cases you have that “Disney moment” where the child lights up when they hear their first sound and act like this is what they were waiting for their whole life!

For SJ we did not have a Disney moment. In fact, I would call it more like a dentist moment or worse (for the stereo typical child that does not like the dentist). The hearing aids were squealing, she got very upset and kept trying to pull them out. The Doctor wanted to make sure that J and I knew how to put them in so she had us practice a few times before we left and it was rough. She repeatedly told us that we just had to work through this stage and when SJ takes them out just put them back in. She cried and cried and looked at me with those big puffy eyes full of tears like MOM save me! I pictured us wrapping her up in our arms like a  straight jacket just to get her out of the office with them still in. It was not a pretty mental picture. LUCKILY, we were told to give her a rest and try again when we got home. We are supposed to start with 2 hours a day, increasing the amount of time she keeps them in each day, and by a week they basically need to be in at all times.

After a stop at McDonald’s and a nap, I said Okay, let’s do this. Hearing Aid boot camp here we come. We pulled out all the stops; squeezable yogurt, a juice box, and a popsicle. J pushed her in the swing which was perfect because she had to hold on. We watered the garden and played fetch with the dog. These are all activities that she loves and kept her hands occupied and her mind distracted. By the end of the two hours I felt like we had tamed the beast.

Once she had warmed up to the idea of the devices I got out my camera to document this moment. These shots will give you an up close look at her new daily accessories. The aids are attached to a bungee cord that clips on the back of her shirt.

For now the aids are encased in a flesh colored sock thingee (don’t mind my technical jargon) and this is to prevent damage if they do fall out or hit something.

The mechanical part of the hearing aids are pink, but until we know she can be trusted without all of the protective gear, you can’t even see that part. In fact, we pulled her hair back to help us get them in, but even with trying to photograph the aids, in a lot of pictures you just can’t see them at all. 
The mold that goes in her ear is clear. She has already been refitted for a new one. They need to be precise and at this age the ears are changing all the time. It’s been over a month since they did the first mold and it appears that it is already too small which maybe why the aids are giving so much feed back which I guess is referred to as “whistling”. 
Yesterday she wore them for 4 hours and only took them out twice. This time instead of plugging her ears at the sight of them she did not protest at all which makes me think maybe she does enjoy the newfound sounds. 

There are still a lot of unknowns with her condition and a lot of trial and error from what I’m told. The volume starts at HALF of what it should be and will gradually increase over the next 3 weeks. So far I’ve noticed a few times that she seemed to react to a noise (once was at the doctors office when they tested with some maracas.) Honestly though, it’s hard to tell what she can hear and I try not to jump to conclusions. I’ve learned a lot about patience through this journey so I guess we’ll just have to wait and see how she does as the volume increases and the speech therapy begins. Our Disney moment will come.  God has a plan. I really do believe that.

By |2023-06-12T06:18:37+00:00June 10, 2012|Hearing Aids, Uncategorized|3 Comments
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SJ Update

Things are starting to move along since SJ was diagnosed HOH a month ago. We’ve seen a couple specialists from the First Steps program and everyone that we’ve met so far has been so wonderful and helpful. They’ve all fallen in love with our baby girl and are eager to help her get to where she needs to be developmentally. A couple days ago someone came to the house to evaluate her. We know that she has severe hearing loss, but many times children like SJ can also be behind in other areas because audio and speech delays have made an impact in developing other important skills like cognitive and social. Thankfully this is not the case with SJ!
It turns out she is a genius that is hard of hearing. Okay, I am the typical proud mom exaggerating a little, but she did do extremely well on all of the tests. Her case worker did many different play therapy games with her to see how well she could follow instructions, and use her fine and gross motor skills. She did puzzles, stacked blocks, and sorted things by color. She drew a circle and a line perfectly. She caught a ball, ate yogurt with a spoon, and turned upside down pictures right side up. The lady was blown away by her attention span and how well she performed. The hard part was they still had to check at what age she was developing her speech and hearing, which of course she is WAY behind in. She did not respond to her name at all when called from the other room and she couldn’t point out eyes and ears without the use of gestures. She also can’t pronounce any consonants except maybe a slight m sound. The workers have been so gracious to warn us that it can be hard to hear the results of these tests knowing that your child has a disability. In some areas she is ahead of her peers, but when it comes to hearing and speech she scores at the level of a 2 month old. You might be thinking well, of course she does, she is physically impaired, it’s nothing to be ashamed of, it’s still hard to hear though. However, I am not discouraged. Everyone is excited about the chance to work with her because she is just a ton of fun and they can’t wait to see how much excels once she is aided. 
Speaking of aided, she gets her first set of hearing aids in just a couple days. She is going to go from hearing basically nothing to being able to hear music, voices, the dog barking, her favorite TV shows, and so much more. I can’t imagine what that would be like. I am not getting my hopes up that she is going to light up when I say her name or that she will start talking right away. I don’t know what to expect, but I do know that some children don’t like having hearing aids at first. They have no context for the sounds around them and they may be irritated by having to wear the devices, but we have some experience with that already. 
When Z was 15 months old he got glasses 
He did well with them, but we went through a few tough times of him loosing and breaking them before they became something that he actually took pride and ownership in. Some of my friends may remember being a part of the search party at the park several years ago. The men, women, and children that were  with us painstakingly scouring of every inch  of the wooded area to find this little pair of frames that we did not have $400 to replace! Thankfully we did find them that time. These days Z takes his glasses off to swim, bathe, and sleep that’s it (much like his sisters hearing aids will be). 
There are so many times I have been grateful that I am going through all of this with my 2nd child and not my first. Not just because of the glasses thing, but I feel like I have some frame of reference for what to expect in general. I think if SJ was my first I would worry that every little fit and tantrum was because of her hearing loss or inability to communicate verbally, but I’m no rookie. I know that most of the times that she is upset or acting out is because she is TWO and that is what two year olds do along with being stinking adorable. 
I’m glad that I have this blog to share all of these details with family and friends. I  have heard your requests and will be teaching some of the signs she knows via blogging for anyone that is interested in being a part of SJ’s “first language” along with continuing to keep everyone posted on what happens with the hearing aids next week! More to come.  

By |2015-05-14T23:15:40+00:00June 6, 2012|Uncategorized|1 Comment
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Super Excited Big Brother

It will be interesting to see how both kids adapt to their new sibling in 4 months. Z is so excited already. He wanted a baby brother more than anything and was thrilled when he found out his dream was coming true. My recorded this on her phone during the ultrasound.

 He will give everyone in the family kisses and then kiss my belly and say “can’t forget that little guy”. I can’t wait to see them together! In preparing for our gender announcement photo with the clothes line thing

 I went to a consignment shop to find some baby boy clothes and I stumbled upon a smaller version of Z’s rock band pajamas. He calls them rock band pajamies because they have electric guitars on them and I guess it makes him think of the xbox game Rock Band. He should be able to still fit in them this winter and they are going to be so cute in their matching PJ’s.

I know that having 3 kids is going to be an adjustment, but I love watching our family grow and having Z at an age where he can experience this whole process with more understanding just makes it that much better.

By |2015-05-14T23:15:40+00:00June 3, 2012|Uncategorized|3 Comments
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Learning to Communicate

Finding out you have a child that can’t hear is a little bit of a shock, but as with most situations in parenting you have only a moment to let it sink in before you have to respond. The day SJ’s was diagnosed we were sent home with quite a bit of reading material about being the parent of a child that is deaf or hard or hearing. That alone is a little surreal. I feel like parenthood has thrown me a few curve balls already, but nothing that required a team of experts and a stack parenting handbooks. 

  

The most important thing for me at this point is to give my daughter a way to communicate. SJ is still at a good age to pick up speech quickly, but the ideal window for acquiring a first language is half closed already. The doctors and therapist can only work so quickly. No matter how concerned they are and how much they encourage a sense of urgency it seems like the standard protocol in this field is “hurry up and wait”. I can sit around and wait for the Doctors, but the thing is, I am pretty stubborn.  I am ready to communicate with my daughter now and I know that sign language is realistic way to do that. So I have been devouring every bit of information I can in this area. In less than 2 months I have acquired a 250 word vocabulary in ASL. SJ has gone from knowing 5 words to 9 which might not seem like a big deal, but those are just the words that she is producing on her own. She repeats and understand a lot more than that. It’s a big step forward in minimizing frustration and educating her about the world around her. 

For example, we went to the zoo and beforehand I learned every zoo animal sign I could think of because  she wasn’t going to hear me say elephant or rhinoceros, but she could see me sign and start identifying that these amazing creatures have names! Here is a little video of her signing shoe, which is basically thumping your fist together at the thumbs.

I have so much to say about sign language, which I will be sure to post more on in the near future. When SJ gains oral communication she may decide to drop signing all together or our whole family could end up bilingual. Either way I’m hooked. I know I am just a beginner when it comes to this beautiful language, but I am grateful for what it has already done for me by enabling me to communicate with my daughter. It’s funny, I’ve been vocal my whole life (just ask my family), but for this season that I am in it’s like ASL is what has given me a voice.

By |2023-06-12T06:31:57+00:00May 27, 2012|ASL, Our Hearing Loss Journey, Uncategorized|3 Comments
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It’s A…

It’s a BOY! We were so excited when we found out because a girl would have been equally as great, but I just had a feeling I was having a boy and was vocal about it. There were a few things about this pregnancy that reminded me of when I was carrying Z. On top of that, Z had us all convinced that he was getting a brother and was overjoyed when it was official.
Someone on Facebook mentioned that now SJ would have two brothers to take care of her, and I completely agree. I grew up with 3 brothers so I know what it’s like being sandwiched in-between the boys, but I have no doubt that she will be able to hold her own. Many of you know the story of how I lost my little brother Zeb. We were very close and I will always cherish the memories of our bond. Because of this experience I look forward to seeing how the relationships develop among my children. 
In other good news I am HALF WAY through the pregnancy. This is my official 5 month photo (thus the hand in the air).
 I can feel the baby moving around all the time now. I felt him for the first time on mother’s day which I guess was his little way of winning me over as if he hadn’t already. This last appointment confirmed that the baby and I are as healthy as can be and I feel blessed. 

By |2015-05-14T23:15:40+00:00May 23, 2012|Uncategorized|2 Comments
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Appointment Overload (I need your help getting organized)

I am glad we had a little vacation time recently because we’ve hit the ground running when it comes to Doctor’s appointments. Doctor’s visits have been a rarity in my life, but lately we’ve entered into a whole new terrain and I feel like a fish out of water! Here’s the low down

There’s me.

Z took this photo of me after my last prenatal checkup. 

I am 19 weeks pregnant. I have a dentist appointment tomorrow which had been rescheduled because of an opening for SJ to see an ENT. So we’ve got appointments on top of appointments. Then on Monday I have an appointment with the Sonographer for my 20 week ultrasound followed by a prenatal visit with my midwife. We have decided to go ahead and find out if the baby is a boy or girl. We thought about keeping it a surprise, but I think you will all understand when I say we have had enough surprises lately. J and I feel like some good news will be welcome and either a boy or a girl will be a reason to celebrate ( and pick out names and go shopping. Woo Hoo.).

Then there is Z who had his final appointment with his pediatric ophthalmologist in Fort Worth during our visit to Texas a few weeks ago. The Doctors visits don’t stop even when we are on vacation. It was sad to say goodbye to Dr. Norman who has been taking care of Z’s vision, including surgery, since Z was barely a year old, but as tempting as it is, 900 miles is a little far to drive for a check up. While Z was at this appointment he got a new prescription and it is slightly weaker. We will get some new glasses for him as soon as our medical card comes in.

Z with the glasses he’s had since December ’09.

Lastly we have SJ who has appointments every month, left and right. I feel like I am always on the phone with Doctor’s, receptionist, therapist, or case workers. So far though we haven’t seen anyone since her testing. I know it will slow down eventually, but for now it’s the number one priority in our schedules.

SJ right after her ABR where she was diagnosed hard of hearing. She was still in her comfy PJ’s.

This morning I was going through the mail, plus some papers I had scribbled on, and looking at my calendar, I was feeling just a little overwhelmed. I need a system. I have ical on my computer and that helps a lot, but I need a better way of taking notes and keeping all of our documents in order, and portable enough that I can take things to appointments with me when I need to, because I often do. I know some of you have the gift of organization and I know there are others that have special needs children and have probably been in my situation. How do you do it? I love technology so I don’t mind using apps or programs (I am a mac girl though, so I need stuff that jives with my laptop and iPhone), but I also have paperwork, informative packets, bills, and notes I jot down when I am on the phone so it can’t have everything on the computer. AHHH! So far I feel like I am juggling it okay, but I can tell that what I have going is not a long term solution. I am open to any advice, products, or tips. Please help a mother out!!!

By |2015-05-14T23:15:40+00:00May 15, 2012|Uncategorized|3 Comments
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