I Have Meniere’s Disease?

I have so much that I have wanted to blog about, but life has so rudely interrupted my attempts. Vertigo has no manners I tell you. 

The first time I ever experienced vertigo was about 10 years ago. I was hanging out at my friend’s pool and suddenly I couldn’t even walk straight. I was so dizzy I had to be carried to the car and it was there that the nausea turned into vomiting. No fun at all. I could tell that the source of the imbalance was coming from my ear which had been ringing and what I could only describe as a stuffy, cloudy feeling. It eventually got bad enough that I drug my uninsured self to an ear doctor. I pretty much wasted $400 for them to do some tests and have a Doctor say “Yep, you don’t hear as well on the left side. As far as the ringing goes some people like to use music as a way to distract from the irritation that intensifies in silence.”

 My ear issues have come and gone since then. I mostly just deal with it, but over the past couple years it seems to have gotten worse. I have been embarrassed to talk about it because I don’t like to seem like a hypochondriac. I feel like it could look like a desperate attempt to compete with my daughter’s deafness. The truth is though, I know I don’t hear well at all from the left side. I realized just how bad when I had ear buds in and I swore the left side wasn’t working… until I put it in my right ear. After doing some online research I diagnosed myself with Tinnitus (this was about two months ago). Tinnitus basically just means ringing in the ears.

On Friday I had another rare episode of vertigo where it felt like my eyes were scanning the room diagonally and rapidly, but it was all involuntary. Up down. Up down. Up down. The room was spinning except I couldn’t see behind me so to me spinning isn’t even the right word. I started freaking out a little bit and told Z to get my phone. I hunched forward and when it ceased I said “that was trippy” which is a word I never use. Then I was able to get to a plastic bag just in time to loose my lunch (via the upchuck). This happened again on Monday (in a Kroger parking lot) and Tuesday. Each episode was usually followed by covering my face with a  wet rag and always falling asleep.

After a little more online research about tinnitus and vertigo I found one article after another that had my symptoms written out with complete accuracy. 

  • Dizziness or vertigo, often with nausea and vomiting
  • Ringing or roaring in the ear (tinnitus)
  • Fluctuating hearing loss
  • A feeling of fullness or pressure in the ear

and there was a name for it 

Ménière’s disease

The Mayo Clinic says a diagnosis of Meniere’s disease requires:
  • Two spontaneous episodes of vertigo, each lasting 20 minutes or longer
  • Hearing loss verified by a hearing test on at least one occasion
  • Tinnitus or aural fullness
  • Exclusion of other known causes of these sensory problems

That’s it. That’s me exactly. On top of that it can first appear in your early twenties (like for me), the vertigo is followed by episodes of fatigue (check), and most enlightening to me was how the hearing loss fluctuates in the early stages, but eventually becomes permanent (so I am not crazy). Some of the things I read were kind of scary like no cure and no known cause. But in some cases it is just considered “mildly irritating”, which is how I feel most of the time (ha ha). I just laid out all of the worst aspects of it over the course 10 years. This probably makes it sound terrifying, but most of the time it’s just a mildly irritating frustration that I have learned to deal with. 

So that is why my blog has been a little quiet lately. Well, that is one of probably 50 reasons why. There is a lot happening right now. But as far as my newly diagnosed disease, I am first of all just glad to have a name for it and an idea of what is going on. And even though medicine may not be able to cure it I know the great physician, the ultimate healer, my savior Jesus Christ and I have peace in that.  

By |2023-06-12T06:30:19+00:00May 24, 2013|Our Hearing Loss Journey, Uncategorized|3 Comments

Summer School Fundraiser

It’s no secret that we’ve been through a lot the past year (and then some). All the while the Lord has been faithful and we’ve been carried through it all thanks to our faith, family, friendships, and community. When I signed SJ up for summer school, (which would be imperative for her at this stage) I inquired about grants and scholarship. I even asked if we would just continue our monthly payments. Then on Friday I found out that there is no outside funding available for Kentucky residents and the flat rate of $775 is all due at once.

I am not freaking out nor am I in a state of emergency. I just thought it would be helpful per the request of loved ones, if we started up a sponsorship page for SJ (Sedona or Sedona Jean is her name outside of blogland in case that is confusing). We’ve been extremely blessed to have all of her medical care covered at this time and we haven’t always been able to say that, so I am grateful for God’s provision. I know that HE will meet all of our needs according to the riches of his glory in Christ Jesus (Phillipians 4:19). 

By |2015-05-14T23:15:36+00:00May 17, 2013|Uncategorized|5 Comments

Ezie’s First Meal

I’ve done a lot of research on when to initiate solid food with my baby. He is obviously growing and  receiving plenty of nourishment from exclusively breastfeeding the past 7 months, but what it boiled down to was Exhibit A:
I might be going out on a limb here, but to me this boy looks like he might be ready for some beginner soft solid food… or a t-bone, but first things first. 
SJ was started on avocado and that went well, so I decided to go for it again. Ezie had mashed up avocado with plenty of breast milk to make it more familiar to him. We used the rest of the avocado on our own grilled BLT dinner. 
I love that we can all eat the same thing. 
The bib he wore was the first thing I ever bought for him. I got it over a year ago before I even knew he was a boy.

And the dish the meal was prepared in was some of my sister in law’s hand made pottery. So it was a special occasion all the way around. 
I am not entirely sure how much of the food he actually ate. I’ve fed him several times since then and the jury is still out, but he seems happy about the experience so I am too. 

 

By |2015-05-14T23:15:36+00:00May 15, 2013|Uncategorized|4 Comments

Laughter

Who doesn’t love a good baby laugh? I know I do and my kids do too. They have a way with getting their little brother to squeal with delight. One day I decided to document this display of sibling affection and I captured this video of the kids entertaining each other. Z and SJ were running around on the porch making E laugh so hard he could just about burst out of his bumbo.

But before they made him laugh they made me laugh with this next episode. It was the same concept, act like crazy monkeys and get the baby to laugh, but I kept telling them they were being too rough (you can even hear me say it at the beginning of this clip). He takes a lot of abuse from his big sis who doesn’t quite understand that he isn’t one of her baby dolls. Eventually she literally pushed him too hard.

For the record she was fine and got right back up. And that’s when we took things outside. “LOL”

By |2015-05-14T23:15:36+00:00May 9, 2013|Uncategorized|5 Comments

Spring Time

May looks like it will be a season of closure in some ways. SJ will be graduating from the toddler program at her school, J will have his last day where he is currently holding a temp job, and Ezie will no longer be exclusively breastfed. However when I look back at the past month I see that along with some of the bittersweet springtime goodbyes this season also gives us plenty to look forward to.

Like sunshine!

Fun time

Kid time
“kid time”

Barefoot time

Skirt time 

and Family Time. 
What are you looking forward to in the second half of Spring?

Today I am linking up with Miscellany Mondays AND Hello Monday at Lisa Leonard Designs.
By |2015-05-14T23:15:36+00:00May 6, 2013|Uncategorized|4 Comments

Speech Therapy Behind The Scenes

I don’t mean to sound like a broken record or, to be more current, a song stuck on repeat, but learning to talk with a cochlear implant is a lot of hard work! SJ rivals A-List celebrities with the size of the entourage she has working with her. I even have to go special meetings, classes, and conferences to learn right along with her. 

She goes to school 5 days a week and has private therapy daily. She has made some significant strides since she was remapped a month ago. She turns to her name consistently. I used to call for her as a listening test just to see if “it worked”, now I call for her in a normal and practical way expecting that she will respond to my voice. She has even heard me from another room. Some sounds that are frequently heard around our house are the baby crying, Z’s video games, a timer beeping, and the cell phone ringing. I shared the video I have of her hearing the first two and since then she has also responded to the timer and the phone. This is a breakthrough that I had previously only dreamed about! 

There are so many steps to hearing that we take for granted because for most of us it is just like breathing or drinking. I bet you are a pro in the area of auditory processing. If you go outside and hear birds chirping up in the trees, you are able to accomplish sound detection, discrimination, and localization without even trying. This process is one that we are in the middle of working on with SJ along with starting some vocalization. So far SJ has said “Uh-Oh”, “up”, “more”, and some animal noises. She has made several attempts at other words when prompted too (prompting is when you say the word for her so that she can repeat it). One thing I’ve learned about since she started school that is worth mentioning is called”approximation”. It’s when the word sounds approximately like whatever she is trying to say. When SJ tries to mimic a word, or produce a sound, or a melody, it is usually completely unrecognizable, but for where she is at (5 months old hearing age) she is doing great. We are not working on articulation. We are not working on sentences or manners yet. What we are working on right now is getting her to be able to recognize and produce basic sounds and every effort on her part is worthy of celebration. 
In this video you will see SJ putting together a Mr. Potato Head. Her therapist is prompting her to say the name of each part before giving it to her. She doesn’t always cooperate (just to be perfectly honest), but this was a good day for this particular activity. 

Now that is what a I call a pretty little girl with a bright future! 
By |2023-06-12T06:33:16+00:00May 3, 2013|Speech Therapy, Uncategorized|3 Comments

How Young Is Too Young? The Career Minded Child and the Parents That Drive Them.

Whether it’s Tiger Woods or Toddler’s in Tiaras some children are trained at the youngest of ages to be the best of the best and do whatever it takes to achieve their dreams. But whose dreams are they really?

I saw an ESPN documentary on Netflix called The Maronovich Project where a father raised his child from birth to be a professional football player. He did stretches with him as a baby and he never allowed any processed food to touch his lips. He had rigorous training throughout his entire childhood and eventually did go on to be a quarter back in the NFL. Unfortunately he also became a drug addict which would end his football career shortly after it began.

On a more positive note I read an article recently where a family with 10 kids had 6 of their children in college by age 12 and the younger four that remain will probably follow suit. My first reaction was what is the hurry? It’s not about how soon you start, but how you finish. So far it turns out they finish well. One is a space craft engineer, another an architect, and another is on her way to becoming  one of the youngest Doctors in history. The parents claim that they are just “average folks” and attribute their success to homeschooling. In a CNN interview 16 year old Serennah Harding speaks highly of her parents saying “They found our interests and they cultivated those and helped us pursue those and learn at our own pace” and she gives credit to God for what he’s done in their family and how he has blessed them. It’s easy to think these parents from Alabama were pushing the kids too hard and stealing their right to childhood, but after watching the interview I am convinced that they are a sweet loving family that just happen to have really smart kids.

I personally know of a couple different families who claim their kids knew what they wanted to be at a young age and they held them to it and I know them as successful adults now. For example one of my elementary school classmates did pageantry when we were younger and she eventually became Miss Missouri in the Miss USA pageant. Now she is a news anchor woman in Cleveland. She is expecting her first child, which they just found out is a girl. The city lit up one of it’s historic buildings in honor of the announcement.

 

Her brothers have been equally as successful. Their parents truly are the sweetest most loving couple, but they are also “average folks”. Their dad was and still is a coach at the school I went to as a child. At a resent graduation banquet he was quoted saying “Good stops at good, but great never quits.” Call me miss lack of motivation, but that sounds exhausting to me. 

Speaking of quotes one of my favorite lines is from a Rhett and Link video about a college student telling his parents he is switching majors.

“I only did engineering because of that time when you said You’re so good at Legos. maybe you’ll be an engineer. Mom, engineering is harder than Legos.”

This scenario is probably more common than the child prodigies we’ve seen on Oprah. More than likely the sweet little girl you bought so many kittens for, the one that wanted to be a veterinarian, will end up in real estate loathing the chore of selling homes with pets and you will be left raising all of her cats. Isn’t that more typical? Seriously though, when is a reasonable age for a child to know their passion or their calling, and to strive for it? All I know is that right now Z wants to be Batman when he grows up  and when he turns 20 he wants to own a “batmovehicle” and I support him 100%.

By |2015-05-14T23:15:36+00:00May 1, 2013|Uncategorized|2 Comments

Cholos, the M.O.B. Society, and Library Love

My 5 year old dresses like a white cholo. For those that are unfamiliar with the term Cholo, the Urban Dictionary describes it in part as a Hispanic male that typically wheres a flannel shirt unbuttoned except for the very top button. This is how Z dresses every day.

 
Don’t worry it’s not gang related. It makes him feel like he is wearing a cape. Every once in a while I can talk him out of it, but lately every day he asks to wear one of his capes. He is about as boy as a boy can be.

When a friend of mine posted about the M.O.B (mother of boys) Society doing a book club I signed up immediately. 
The book is called Wild Things- The Art of Nurturing Boys. I had three brothers and was the only girl in my family, but I still could definitely use some guidance in this area. 
I checked online to see if they had the book at my library and they did not have it at our specific branch, but I could order it. The next day while at the library I told them  I had put a book on hold, but it was coming from another library and I wasn’t sure how to order it. The librarian looked up my card number and informed me that the book had already been delivered and was on the shelf waiting for me. I went to look and sure enough there it was labeled with a slip of paper that had my name on it. I couldn’t believe it. The night before I had just clicked a button requesting the book and it was pulled off the shelf, put on a truck, driven to my library within 24 hours just for me, and it didn’t cost a thing. God bless America! 
This is my first book club and it all starts tomorrow. Hopefully I’ll learn a thing or two about how to raise up strong godly men without going loco on my ese. 
This Miscellaneous compilation is part of Miscellany Monday. Check out Lowercase Letters for more random fun. 
By |2015-05-14T23:15:36+00:00April 28, 2013|Uncategorized|6 Comments

He Said I Have The Best Looking Eyes

It was one of those mornings. Again. SJ did not want to put clothes on and naked students are frowned upon at her school. I couldn’t find any quick grab breakfast items so the kids had to share a granola bar to which Z insisted on picking out the parts he didn’t like. It took at least 5 trips from the house to the car before I had everyone and everything packed up and ready to go.

While we were in the car I realized SJ’s headband was not clipped to her hair. She wears headbands to keep her cochlear implants on and if they aren’t clipped it slides off pretty easily.


No, I did not take a picture in the middle of the craziness, this is from another day. 


Oh dear. Where is a barrette? Please tell me there is a barrette in this car! I shouted out loud. When I became a mom I stopped talking to myself and started sputtering words to my kids. It’s the same thing really.

I did in fact find a barrette and we were on our way! I don’t love driving 45 minutes to school every day, but it gives me a chance to sit down and stay put, and the kids are forced to do the same. So that part is nice.

“Mom,” Z said, “You have the best looking eyes.”

Wow. I thought I didn’t hear him right so I asked what he said, and he repeated himself. It’s almost like he had read my thoughts, or my blog post from yesterday, about how women want to feel beautiful. I was reminded of the time he told me I smelled like a princess. My love language is words of affirmation and this boy knows how to speak my language. I told him Thank You and that it was a very sweet compliment that meant a lot to me. Then Z said “Sometimes I have the best looking eyes, but today it was you.” I was a little confused by what he meant, but I am glad he likes his eyes. He continued on “Because you were the one that found SJ’s hair barrette! Good job, mom.”

I think I could have laughed the rest of the way to school. I have the best LOOKING eyes, because my eyes are so good at looking and finding things. Of course.

I still take it as a compliment.

By |2017-08-28T13:18:17+00:00April 26, 2013|Uncategorized|6 Comments

My Response to The Response (about the Dove Ad)

So it’s a big old viral deal this “Dove Real Beauty Sketches” thing.

The video was released a week ago and now there is link flying around the internet as a response (or better yet, a rebuke) to the Dove campaign. There are several actually, but Jazzy Little Drops Tumblr is the one I saw posted by my friends on Facebook. With as much as I was not that passionate about the Dove video, for whatever reason I was passionate to defend it. I think the reason I feel this way is because Dove is TRYING, they may not be perfect and have the exact amount of diversity per second, and maybe they need a better representation of the plus size market, but they are working towards changing the way women think about themselves. Those that responded negatively to the video were also trying to take a stand for real beauty and I applaud that as well. What surprises me though is that there are hundreds or thousands of brands that want to suck every last bit of confidence out of you so that you are at their mercy in your quest to find the pot of good looks at the end of the rainbow. Dove is actually doing the opposite. They are saying YOU ARE BEAUTIFUL the way you are naturally, and don’t be a slave to all the negativity. I understand the thing about inner beauty, but Dove makes products for our body. We might use moisturizer because it makes our skin supple, or deodorant because we don’t want to smell like a steamy swine. The thing that gets me about these Dove complaints is that some people want to act like external beauty doesn’t even have a place and that is what I want to talk about.

 This was one part of the Jaz’s tumblr that caught me off guard.

“Because the message that we constantly receive is that girls are not valuable without beautyBrave, strong, smart? Not enough. You have to be beautiful. And “beautiful” means something very specific, and very physical.”
I agree. We live in a glutenous lustful world that puts way too much emphasis on appearance. Way, way, way too much. But let’s face it, we all have an appearance and it is healthy and natural for a girl to want to feel valued through that as well. I’m not talking about the unrealistic over sexualized box that the culture says beauty is. But women want to be beautiful inside and out and I think that’s okay. No woman EVER wants to hear “you are not physically beautiful, but don’t worry because you are still smart and you are very valuable in other ways” BEEEEEP wrong answer. To tell a girl she is brave, strong, and smart is not enough. We shouldn’t expect it to be.  What I fear when I see concepts like this going viral is a big pendulum swinging a little too far. I am the first one to stand on a soap box when it comes to the problem with poor self image in our society and how we know that man looks at that stuff, but God looks at the heart.  What I also know is that God placed physical beauty among us for enjoyment. It’s tangible, it’s real, and it’s nothing to be afraid of. Staci Elderedge says in her book Captivating “Nature is not primarily functional. It is primarily beautiful. Which is to say, beauty is in and of itself a great and glorious good.” Our culture has wanted to emasculate men for generations, I am not about to relinquish femininity just because it’s been distorted. Someday my body will corrode and turn to dust, but for now my skin is soft and my hands are so delicate, 
My mom’s smile is attractive and radiant.  
 My daughter is gorgeous with big brown eyes that tell beautiful stories. 
What would this be without inner beauty? Nothing, but I get why Dove would think it’s not such a bad idea to enjoy these outer qualities that God gives to us. 
Both sides of this “controversy” have a point, but I thought the video for the most part did a good job focusing on “natural beauty” and being open, or cheerful versus an unhealthy bitterness. Let’s face it, you could have women look and dress exactly alike, but their personality and view of themselves make them look more or less attractive. Part of the problem everyone had with the video was that they were labeling. The way I saw it was that the “ugly” drawings aren’t literally saying “See, this is you as an UGLY woman” they are just drawings of a woman that isn’t flourishing. Let’s flourish for crying out loud. Sorry for the ramble, but this a very important topic to me and I am always ripping into marketing campaigns on a regular basis, but this is the one time I am going to side with the beauty product ad. I guess you could call me the “dove-ils” advocate. 

By |2015-05-14T23:15:36+00:00April 25, 2013|Uncategorized|4 Comments
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